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Protecting Johnny’s Spirit: The Parenting Journey of an Autistic Child

When I first started my blog, I named it “Johnny’s Spirit” after my son’s nickname. While I’ve shared the story behind his nickname, I don’t believe I’ve ever explained why I chose that name for my blog. As a parent of an autistic child, one of my biggest concerns is protecting my son’s spirit. His…

Reflections on Acceptance, Understanding, and Making Space for Difference

Last night I laid in a full-size bed, inside a tent, under a train blanket, with my 8 year old son. He had just fallen asleep. Beforehand, we talked, sang, and laughed. He asked me to hug him tight, and I did as he fell asleep. Slowly releasing him before he completely drifted off. Tight…

Hello 8!

My sweet boy turns eight years old at the end of this month. Today, I made his party invitations. He is autistic and, like most things, that makes his birthday parties a little different. There are a lot of wins this year when it comes to his birthday planning. First, he picked where he wanted…

I’m Proud of Both of Them

We just finished parent teacher conferences for my daughter. Holy moly, the difference between my two kiddos conferences. Today, we didn’t have to check in on IEP goals or compare therapy notes to school data. Things we want to do for our son, but it’s work and not at all simple.

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We have undergone numerous appointments in the past few months, seeking answers for both of my children. Protecting Johnny's Spirit "He doesn’t love me, mom," my daughter said to me during a conversation about her brother's recent meltdown. https://www.instagram.com/p/CsEK2q6rpfT/ Our first ever live in person podcast!! That's what I was doing April 29th :). She is the caretaker. Some days, I wish we could just be. As a mother, I want the best for my children and our family. But sometimes, the pressure to do it all can be overwhelming. "You alone are enough. You have nothing to prove to anyone.” – Maya Angelou As many of you know, April is Autism Acceptance Month. For those new to the community, sadly, this month brings out a lot of division and not enough unity.